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Newsroom
XLA Life Newsroom
Mar 18, 20241 min read
Event! Immune Deficiency Foundation Nation PI Conference
What: Immune Deficiency Foundation conference. Meet other families living with immune deficiencies, get the latest in research, and...
Feb 26, 20244 min read
My XLA Life: James Rukin
Today we are delighted to share a spotlight interview with James Rukin - XLA Life’s newest team member. The interview was conducted last...
Oct 5, 20237 min read
My XLA Life: Austin Stack
An Interview with the Jeffrey Modell Foundation Today we are delighted to share a spotlight interview with Austin Stack - XLA Life’s...
Dec 22, 20222 min read
Community Mental Health Resources
XLA Life is committed to improving the lives of those living with XLA. Despite evidence that living with XLA increases chances of mental...
![[Immune Deficiency Foundation] Report shows health benefits of Medicare IVIG Demonstration](https://static.wixstatic.com/media/7fbaa1_04b678b9291b47eea112ce69f68a8e1d~mv2.png/v1/fill/w_668,h_376,fp_0.50_0.50,lg_1,q_95,enc_auto/7fbaa1_04b678b9291b47eea112ce69f68a8e1d~mv2.png)
Dec 22, 20223 min read
[Immune Deficiency Foundation] Report shows health benefits of Medicare IVIG Demonstration
This article is from the Immune Deficiency Foundation, originally published 11/28/2022. See the original article on the IDF website,...
Nov 29, 20221 min read
Help get XLA on Newborn Screening programs worldwide
NOVEMBER 29, 2022 XLA patients require early diagnosis and treatment. It has been shown that quality of life is improved when patients...
Aug 30, 20221 min read
XLA Life joins PIDTC Patient Advocacy Groups
The Primary Immune Deficiency Treatment Consortium (PIDTC) consists of 47 centers in North America whose shared goal is to improve the...
Jun 29, 20221 min read
President and Executive Director Austin Stack joining the University of Utah Full-time MBA Program
XLA Life is proud to announce that President and Executive Director Austin Stack has been accepted into the MBA program at the University...
Jun 28, 20223 min read
ADVOCACY: Addressing Co-Pay Accumulator Programs
A co-pay accumulator program is a type of drug benefit program in which an insurer or other third-party payer does not count certain...
Jun 16, 20221 min read
XLA Life Fireside Chat with Dr. David Rawlings -- Gene Therapy for XLA
June's XLA Life Fireside Chat focused on Gene Therapy for XLA. We hosted our first guest speaker - Dr. David Rawlings! Dr. Rawlings is a...
Jun 7, 20221 min read
Inaugural XLA Life Fireside Chat with Austin Stack
Welcome to XLA Life's inaugural Fireside Chat! Executive Director Austin Stack is fireside to introduce the first XLA-specific patient...
Apr 20, 20221 min read
XLA Life Initiative: Peer-to-Peer Support Group
XLA Life is excited to announce its first initiative, the XLA Peer-to-Peer support group. Background: XLA can often feel like a lonely...
Apr 20, 20221 min read
XLA Life: the founding
Born in 2022, XLA Life was founded as the world’s first XLA-specific patient foundation 70 years earlier at Walter Reed Medical Center,...
Apr 20, 20221 min read
What is XLA Life?
XLA Life is the first XLA-specific patient foundation. Despite its discovery as the first primary immunodeficiency in 1952, XLA remained...
Apr 20, 20223 min read
Our Team
M. Austin Stack, President and CEO (Michael) Austin Stack was diagnosed with X-Linked Agammaglobulinemia (XLA) at the age of three....
Apr 20, 20221 min read
Newly Diagnosed
XLA Life exists to welcome patients and families into a supportive community with resources and information. If you or a loved one was...
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