ABOUT US

Improving XLA Lives

Helping Hands

OUR MISSION

 To foster the unification and empowerment of the global X-Linked Agammaglobulinemia (XLA) community through education, advocacy, and initiatives that aim to improve the overall quality of life for those affected by XLA.

 
 

OUR VALUES

Knowledge

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Given knowledge is power, at XLA Life, we aim to empower the people of the XLA community with access to information and resources.

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At XLA Life, we aim to expedite the development of therapeutic treatments for XLA by ensuring community-based insights are communicated accurately and thoroughly to trusted research partners.

Healing

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At XLA Life, we understand that the process of healing is multifaceted and unique to an individual's needs. We aim to understand the needs of the global XLA community so that we may be better equipped at developing solutions with a positive real world impact.

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At XLA Life, we understand the current rare disease ecosystem is deficient in trust. We aim to identify trustworthy, community-focused industry stakeholders dedicated to serving and protecting the best interests of the people of the XLA community.

Community

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At XLA Life, we believe in the power of an educated, unified global community. We aim to connect the global XLA community to the opportunities and resources of the existing rare disease ecosystem.

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At XLA Life, we believe all stakeholders should have equitable access to solution generating initiatives and programs. We aim to bridge gaps across the rare disease ecosystem and foster collaborative, mutually beneficial partnerships.

 
Working Together

We are more powerful when we empower each other.

OUR TEAM

Founder and Executive Director

Secretary

Vice President

Treasurer