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Newly Diagnosed

XLA Life exists to welcome patients and families into a supportive community with resources and information. If you or a loved one was recently diagnosed with X-Linked Agammaglobulinemia (XLA), here are a few immediate things you need to know.


1) You are not alone.

- The incidence rate in the USA alone is 1 in every 190,000 male births.

- Many families have gone through generations with XLA


- Fill out the form below to Join the XLA Life family and get in touch with others

MAKE A LINK TO THE JOIN OUR FAMILY FORM


2) Suggested Resources: as we continue to organize resources for the newly diagnosed, read the following links from our friends at the Immune Deficiency Foundation.


- Learn about XLA here

- Join the XLA Families Facebook page


3) Introduction to XLA




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XLA Life is committed to improving the lives of those living with XLA. Despite evidence that living with XLA increases chances of mental health issues such as depression and anxiety, mental health is

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