XLA Life Initiatives

Projects started by the XLA community - for the XLA community

Peer-to-Peer Support Group

Whether you are a newly diagnosed XLA family, or gone through decades of lived-experience, we can all use some support. The XLA Life P2P Support Group aims to match you - patient, caregiver, family, friend - with another XLA life community member. We are enrolling people to help out, and those seeking help.

My XLA Life

My XLA Life aims to highlight and encourage those living XLA lives. We want to hear from everyone: parents, siblings, friends, researchers, even industry collaborators! Check out the XLA Community page for future "My XLA Life" posts.

Coming soon...

Do you have an idea to improve XLA lives? Our team is constantly searching, developing, and listening for new ideas. Please contact us!