XLA Life Initiatives
Projects started by the XLA community - for the XLA community
Peer-to-Peer Support Group
Whether you are a newly diagnosed XLA family, or gone through decades of lived-experience, we can all use some support. The XLA Life P2P Support Group aims to match you - patient, caregiver, family, friend - with another XLA life community member. We are enrolling people to help out, and those seeking help.
My XLA Life
My XLA Life aims to highlight and encourage those living XLA lives. We want to hear from everyone: parents, siblings, friends, researchers, even industry collaborators! Check out the XLA Community page for future "My XLA Life" posts.
Do you have an idea to improve XLA lives? Our team is constantly searching, developing, and listening for new ideas. Please contact us!